Suggested
January 2007
The Clinical Practice Committee (CPC) of the American
Association of Spinal Cord Injury Psychologists and Social Workers (AASCIPSW)
develops an updated list of readings twice a year. The purpose of this
reading list is to provide persons working in the area of spinal cord injury
with a list of classic, important, or otherwise useful references that cover
the main areas related to the psychosocial aspects of rehabilitation.
The reading list is generated in the following manner: 1)
the committee brainstorms and reviews previous reading lists in order to
generate the topic areas; 2) committee members suggest readings in each topic area;
3) recognized experts in selected areas are contacted to provide suggested
readings; 4) AASCIPSW members are encouraged to make suggestions for new
readings, and 5) committee members review and edit the final list.
The Clinical Practice Committee is recognized for their dedicated revision work on this project: Sigmund Hough, Ph.D., ABPP, Chair; Rebecca J. Adcock Ph.D., Board Liaison; Ellen M. Cloyed, MSW, ACSW, LISW; Samuel T. Gontkovsky, Psy.D.; Sara J. Klaas, MSW, LSW; Heather F. Russell, Ph.D., and Jack E. Sherman, Ph.D.
Community Integration,
Recreation/Leisure
Health Behaviors and Prevention
Interdisciplinary Team Functioning
Neuropsychology
and Traumatic Brain Injury
Social Support: Marriage,
Family, Peer/Community
Textbooks:
General/Comprehensive
TOPIC AREAS
Adjustment (Back
to the Top)
*
Caplan (Ed.), Rehabilitation Psychology Desk Reference.
Publishers.
* Elliott, T. R., & Frank, R. G. (1996). Depression
following spinal cord injury. Archives
of Physical Medicine and Rehabilitation, 77(8), 816-23.
* Elliott, T., & Richards, J. S. (1999). Living with the facts, negotiating the terms:
unrealistic beliefs, denial and adjustment in the first year of acquired disability.
Journal of Personal and Interpersonal Loss, 4, 361-381.
*
profile of new traumatic spinal cord injuries: Change and stability over 30 years.
Archives of Physical Medicine and Rehabilitation, 85(11), 1740-48.
* Richards, J. S. (1986). Psychologic adjustment to spinal cord injury during first post-
discharge year. Archives of Physical Medicine and Rehabilitation, 67(6), 362-5.
* Sherman, J. E., DeVinney, D. J., & Sperling, K. B. (2004). Social support and
adjustment after spinal cord injury: Influence of past peer-mentoring experiences
and current live-in partner. Rehabilitation Psychology, 49, 140-149.
* Trieschmann, R. B. (1988). Spinal Cord Injuries:
Psychological, Social and Vocational
Rehabilitation. (2nd Ed.).
* Warschausky, S., Majchrzak, N. E., Lifford, M.,
Associations between family and child adjustment following traumatic injury of
brain versus
spine. SCI Psychosocial Process, 17, 97-105.
Charlifue, S. W., & Gerhart, K. A. (1991). Behavioral and demographic predictors of
suicide after
traumatic spinal cord injury. Archives of Physical Medicine and
Rehabilitation, 72(7), 488-92.
Elliott, T. (1999). Social problem solving abilities and adjustment to recent-onset
physical disability. Rehabilitation Psychology, 44, 315-332.
Elliott, T., Uswatte, G., Lewis, L., & Palmatier, A. (2000). Goal instability and
adjustment to physical disability. Journal of Counseling Psychology, 47, 251-265.
Jackson, S. A., & Hough, S. (2004). Adjustment to the process of grief following a spinal
cord injury/dysfunction. SCI Psychosocial
Process, 17(3), 145-155. SCI Nursing
(2005), 22 (1), 15-9.
Kewman, D. G., & Tate, D. G. (1998). Suicide in SCI: A psychological autopsy.
Rehabilitation Psychology, 43(2), 143-151.
Lammertse, D. P., Jackson, A. B., & Sipski, M. L. (2004). Research from the model
spinal cord
injury systems: Findings from the current 5-year grant cycle. Archives of
Physical Medicine and Rehabilitation, 85(11), 1737-1739.
Livneh, H., Martz, E., Bodner, T. (2006). Psychosocial Adaptation to
Chronic Illness and
Disability: A Preliminary
Study of its Factorial Structure. Journal of Clinical
Psychology in
Medical Settings. 13(3), 251-261.
Lustig, D. C. (2005). The Adjustment Process for
Individuals with Spinal Cord Injury:
The Effect
of Perceived Premorbid Sense of Coherence. Rehabilitation Counseling
Bulletin. 48(3), 146-156.
Marini,
In G. E. Good & G. R. Brooks (Eds.). The new
handbook of psychotherapy and
counseling
with men: A comprehensive guide to settings, problems, and treatment
approaches
(pp. 88-103).
Richards, J. S., Elliott, T., Shewchuk, R., & Fine, P. R. (1997). Attribution of
responsibility for onset of spinal cord injury and psychosocial outcomes in the first
year post-injury. Rehabilitation Psychology, 42, 115-124.
Rohe, D. E. (1998). Psychological aspects of rehabilitation. In J. A. DeLisa & B. Gans
(Eds.), Rehabilitation Medicine: Principles and Practice (3rd ed., pp. 189-212).
following spinal
cord injury. Topics in Spinal Cord Injury Rehabilitation, 6(1), 54-65.
Aging
(Back
to the Top)
* Charlifue, S. W., & Lammertse, D. P. (2001). Aging in
SCI. In
Campagnolo,
& J. DeLisa (Eds.), Spinal Cord Injury Medicine.
Lippincott, Williams, & Wilkins.
* Charlifue, S., Lammertse, D.P., & Adkins, R.H. (2004). Aging with spinal cord injury:
Changes in selected
health indices and life satisfaction. Archives of Physical
Medicine and Rehabilitation, 85, 1848-53.
* Gerhart, K., Charlifue, S., Menter, R., Weitzenkamp, D. A., & Whiteneck, G. (1997).
Aging with Spinal Cord Injury. American Rehabilitation, 23 (1).
* Holicky, R., & Charlifue, S. (1999). Aging with spinal cord injury: the impact of
spousal support. Disability and Rehabilitation, 21(5-6), 250-257.
* Krause, J. S., Kemp, B., & Coker, J. (2000). Depression after spinal cord injury:
relation to
gender, ethnicity, aging, and socioeconomic indicators. Archives of
Physical Medicine and Rehabilitation, 81(8), 1099-109.
* Krause,J.S., Broderck, L.(2005). A 25-Year longitudinal study of the natural course of
aging after spinal cord injury. Spinal Coordination, Feb 15.
* Lammertse, D. P., & Yarkony, G. M. (1991). Rehabilitation in spinal cord disorders. 4.
Outcomes and
issues of aging after spinal cord injury. Archives of Physical Medicine
and Rehabilitation, 72(4-S), S309-11.
* McColl, M. A., Stirling, P.,
of independence and life satisfaction among ageing spinal cord injured adults.
Disability Rehabilitation, 21(5-6), 231-40.
* Trieschmann, R. B. (1987). Aging with a Disability.
* Whiteneck, G. (1992). Aging with Spinal Cord Injury.
Gerhart, K., Chase, T. M., & Weitzenkamp, D. (1998). Aging & SCI: Stressed Out?
Paraplegia News, August.
Kemp, B. J. (1999). Quality of life while aging with a
disability. Assistive Technology,
11(2), 158-63.
Kemp, B. J., & Krause, J. S. (1999). Depression and life satisfaction among people aging
with post-polio and spinal cord injury. Disability Rehabilitation, 21(5-6), 241-9.
McColl, M. A., Arnold, R., Charlifue, S., & Gerhart, K. (2001). Social support and aging
with a spinal
cord injury: Canadian and British experiences. Topics in Spinal Cord
Injury Rehabilitation, 6 (3).
O”Connor, P. J. (2006).
Trends in spinal cord injury. Accident Analysis
& Prevention, 38
(1), 71-77.
Pentland, W.,
with spinal cord injury and the impact on aging. Spinal Coordination, 40(8): 374-
87.
Assistive Technology (Back
to the Top)
* Brooks, N. A. (1991). Users' responses to assistive devices for physical disability.
Social Sciences & Medicine, 32(12), 1417-24.
* Chaves, E. S., Boninger, M. L., Cooper, R., Fitzgerald, S.G., Gray, D. B., & Cooper, R.
A. (2004). Assessing the influence of wheelchair technology on perception of
participation
in spinal cord injury. Archives of Physical Rehabilitation and
Medicine,85, 1854-8.
* Cohen, E., Tate, D., & Forchheimer, M. (1994). SCI resources and outcomes:
Perceptions of resources needed and received following SCI and long term
psychological
and functional outcomes: A pilot study. SCI Psychosocial Process,
7(2), 47-54.
* Cooper, R. A., Boninger, M. L., Cooper, R, Fitzgerald, S. G., & Kellerher A. (2004).
Preliminary assessment of a prototype advanced mobility device in the work
environment of
veterans with spinal cord injury. Neurorehabilitation. 19(2),
161-70.
* Galvin, J. C., & Scherer, M. J. (1996). Evaluating,
Selecting and Using Appropriate
Assistive
Technology.
* Rieger, J. M. (2003). The effect of automatic speech recognition systems on speaking
workload and task efficiency. Disability & Rehabilitation. 25(4-5), 224-35.
* Scherer, M. J. (1996). Outcomes of assistive technology use on quality of life.
Disability and Rehabilitation, 18(9), 439-48.
* Scherer, M. J. (2005). Living in the State of Stuck:
How Technology Impacts the Lives
of People
with Disabilities. (4th Ed.).
* Scherer, M. J. (Ed.). (2002). Assistive Technology:
Matching Device and Consumer for
Successful
Rehabilitation.
*Scherer, M. J. & Cushman, L. A. (2000). Predicting satisfaction with assistive
technology for a sample of adults
with new spinal cord injuries. Psychological
Reports, 87, 981-987.
Merbitz, C., Merbitz, N. H. & Scherer, M. J. (2005). Assistive technology for case
managers.
In F. Chan, M. J. Leahy & J. L. Saunders (Eds). Case Management for
Rehabilitation
Health Professionals Volume I (pp. 197-227).
Aspen Professional Services.
Scherer, M. J. (2005). Assessing the benefits of using assistive technologies and other
supports for
thinking, remembering and learning. Disability
and Rehabilitation, 27
(13): 731-739.
Scherer, M. J. (2005). Connecting to Learn:
Educational and Assistive Technology for
People with
Disabilities.
(APA) Books.
Scherer, M. J. & Glueckauf, R. (2005). Assessing the benefits of assistive technologies
for activities and participation. Rehabilitation Psychology, 50(2).
Scherer, M. J., Hart, T., Kirsch, N., & Schulthesis, M. (2005). Assistive technologies for
cognitive
disabilities. Critical Reviews in
Physical and Rehabilitation Medicine, 17
(3), 195-215.
Scherer, M. J., Sax, C., Vanbeirvliet, A., Cushman, L. A., & Scherer, J. V.
(2005). Predictors of assistive technology use: The importance of personal and
psychosocial factors. Disability & Rehabilitation,
27(21), 1321-1331.
Bioethics (Back
to the Top)
* Appelbaum, P. S., & Grisso, T. (1988). Assessing patients' capacities to consent to
treatment.
* Banja, J. D., & Rosenthal, M. E. (1996). Special
Issue: Ethics. NeuroRehabilitation:
An Interdisciplinary Journal, 6(2).
* Butt, L., & Rothman, J. (1995). Death can be proud. HEC Forum, 7(2-3), 81-93.
* Butt, L., & Scofield, G. (1997). The Bright Line Reconsidered: The Issue of Treatment
Discontinuation in Ventilator-Dependent Tetraplegia. Topics in Spinal
Cord Injury
Rehabilitation, Winter 2(3), 85-94.
* Caplan, A. L. (1988). Informed consent and provider-patient relationships in
rehabilitation medicine. Archives of Physical Medicine Rehabilitation, 69(5),
312-7.
* Caplan, A. L., Callahan, D., & Haas, J. (1987). Ethical & policy issues in rehabilitation
medicine.
* Callahan, D. (1988). Families as caregivers: the limits of
morality. Archives of Physica
l Rehabilitation Medicine, 69(5), 323-8.
* Deaton, A. V., & Hanson, S. E. (1996). Special Issue on Ethics and Rehabilitation
Psychology. Rehabilitation Psychology, 41(1).
* Grisso, T. (1988). Evaluating Competencies: Forensic Assessments and Instruments.
* Hanson, S., Guenther, R., Kerkhoff, T., & Liss, M. (2000). Ethics: Historical
foundations, basic principles and contemporary issues. In Frank & Elliott (Eds.),
Handbook of
Rehabilitation Psychology.
Association.
*
illness.
* Maynard, F. M., & Muth, A. S. (1987). The choice to end life as a ventilator-dependent
quadriplegic. Archives of Physical Rehabilitation Medicine, 68(12), 862-4.
* Patterson, D. R., Miller-Perrin, C., McCormick, T. R., & Hudson, L. D. (1993).
When life support is questioned early in the care of patients with cervical-level
quadriplegia.
* Purtilo, R. B. (1986). Ethical issues in the treatment of chronic ventilator-dependent
patients. Archives of Physical Rehabilitation Medicine, 67(10), 718-21.
* Purtilo, R. B. (1988). Ethical issues in teamwork: the
context of rehabilitation. Archives
of Physical Rehabilitation Medicine, 69(5), 318-22.
* Schneiderman, L. J., & Spragg, R. G. (1988). Ethical decisions in discontinuing
mechanical
ventilation.
* The President's Commission for the Study of Ethical
Problems in Medicine and
Biomedical and Behavioral Research, Making Health Care Decisions, (1982).
Vol. 1.
Banja, J. D. (1996). Ethics, values, and world culture: the impact on rehabilitation.
Disability Rehabilitation, 18(6), 279-84.
Deaton, A. (1996). Ethical issues in pediatric
rehabilitation. Rehabilitation Psychology,
41, 53-72.
Miller, S. S., & Marin, D. B. (2000). Assessing
capacity. Emergency Medical Clinics of
Pollard, R. Q. (1992). Crosscultural ethics in the conduct of deafness research.
Rehabilitation Psychology, 37(2), 87-101.
Wegener, S. T. (1996). The rehabilitation ethic and ethics. Rehabilitation
Psychology,
41, 5-17.
Community
Integration, Recreation/Leisure (Back
to the Top)
* Armstrong, M., & Lauzen, S. (1994). Community Integration Program. Idyll Arbor,
WA: Incorporated.
* BC Paraplegic Association. (2004). Coming Into Focus: People
living with spinal cord
injury in
BC.
http://www.canparaplegic.org/pdf/bc/comingintofocus.pdf
* Boschen, K. A, Tonack, M, & Gargaro, J. (2003) Long-term adjustment and
community
reintegration following spinal cord injury. International Journal of
Rehabilitation, 3, 157-64.
* Charlifue, S, & Gerhart, K. (2004) Community Integration in spinal cord injury of long
duration. NeuroRehabilitation, 2, 91-101.
* Coyle, C., Kinney, W. B., Riley, B., & Shank, J.
(1991). Benefits of Therapeutic
Recreation: A Consensus View. Idyll Arbor, WA: Incorporated.
* Crewe, N. M., & Zola,
people.
* Dattilo, J., Caldwell, L., Lee, V., & Kleiber, D. (1998). Returning to the community
with a spinal cord injury: Implications for therapeutic recreation specialists.
Therapeutic Recreation Journal (First Quarter).
* Kleiber, D. (1999). Leisure Experience and Human
Development.
Books.
* Latimer, A.E., & Martin Ginis, K.A. (2005). The theory of planned behavior in
prediction of leisure time physical activity among individuals with spinal cord
injury. Rehabilitation Psychology, 50, 389-396.
* Lee, Y., Mittelstaedt, R., & Askins, J. (1999). Predicting free time boredom of people
with spinal cord injury. Therapeutic Recreation Journal (Second Quarter).
* Tasiemski, T., Kennedy, P., Gardner, B. P., & Taylor,
N. (2005). The
association of
sports
and physical recreation with life satisfaction in a community sample of people
with
spinal cord injuries. NeuroRehabilitation, 20(4), 253-265.
Daniel, A. & Manigandan, C. (2005). Efficacy of leisure intervention groups and their
impact on quality of life among people with spinal cord injury. Int J Rehab Res.,
28(1):43-45.
Donnelly, C. & Eng, J. J. (2005). Pain following spinal cord injury: the impact on
community reintegration.
Spinal Cord, 43(5):278-282.
Johnson, K. A. & Klaas, S. J. (2005). Societal trends impacting children: recreation
implications for those with spinal cord injuries. SCI Nursing, 22(1)36-37.
Johnson, K. A., Klaas, S. J., et al (2004). Leisure characteristics of the pediatric spinal
cord injury population. J Spinal Cord Med. 27 (suppl.) 1:107-109.
Johnson, K. A. & Klaas, S. J. (2002). Outdoor Recreation: Improving the Quality of Life
for the Pediatric Spinal Cord Injury Population. SCI Psychosocial Process, 16(1),
13-15.
Johnson, K. A. & Klaas, S. J. (1999). Recreation Involvement and Play in Pediatric
Spinal Cord Injury. Topics in Spinal Cord Injury Rehabilitation, 6 (suppl), 105-109.
Johnson, K. A. & Klaas, S. J. (1997). Recreation Issues and Trends in Pediatric Spinal
Cord Injury. Topics in Spinal Cord Injury Rehabilitation, 3(2), 79-84.
Krause, J. S., Devivo, M. J., & Jackson, A. B. (2004) Health status, community
integration, and economic risk factors for mortality after spinal cord injury.
Phys Med Rehab, 85(11):1764-1773.
Lee, Y. & Mittelstaedt, R. (2004). Impact of injury level and self-monitoring on free
time boredom of people with spinal cord injury. Disability Rehabilitation. 7:26
(19), 1143-1149.
Levins, S. M., Redenbach, D. M., & Dyck,
on participation in physical activity following spinal cord injury: a qualitative study.
Physical Therapy, 84(6), 496-509.
O’Neill, S. B. & Maguire, S. (2004). Patient perception of the impact of sporting activity
on rehabilitation in a spinal cord injuries unit. Spinal Cord. 42(11):627-630.
Schonherr, M. C., Groothoff, J. W., et al. (2005). Participation and satisfaction after
spinal cord
injury: results of a vocational and leisure outcome study. Spinal Cord,
43(4):241-248.
Slater, D. & Meade, M. A. (2004). Participation in recreation and sports for persons with
spinal cord injury: review and recommendations. NeuroRehabilitation, 19(2),
121-129.
Smith, B. & Sparks, A. C. (2005). Men, sports, spinal cord injury, and narratives of
hope. Soc SCI Med., 61(5), 1095-1105.
Song, HY. (2005). Modeling social reintegration in persons with spinal cord
injury. Disability Rehabilitation, 27(3), 131-141.
Whiteneck, G., Meade, M. A., Dijkers, M., Tate, D. G., Bushnik, T., & Forchheimer, M.
B. (2004). Environmental factors and their role in participation and life satisfaction
after spinal cord injury. Archives of Physical Medicine and Rehabilitation, 85, 1793-
1803.
Culture and Diversity (Back
to the Top)
* Andrews, J. D. (1995). Cultural, Religious
Ethnic reference manual for health care
providers.
Winston
* Callahan, J. (1989). Don't worry, he won't get
far on foot: The autobiography of a
dangerous
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* Gilson, S. F., MacDuffie, H., & Myerson, K. (In
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* Hales, G. (Ed.). (1996). Beyond disability:
Towards and enabling society.
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133.
* Kemp, B., & Krause, J. (1999). Depression among African Americans, Latinos, and
Caucasians with SCI. Rehabilitation Psychology.
* Krause, J.S. (1998). Subjective well-being after spinal cord injury: relationship to
gender, race-ethnicity, and chronological age. Rehabilitation Psychology, 43(4),
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End of Life
(Back
to the Top)
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SCI Nursing, 20(1), 18-23.
Family and Caregivers (Back to the Top)
As the Years Go
By: Accepting New Help, Caregiving, and
Long-term Caregivers:
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Boschen, K. (2005). The impact of being a support provider to a person living in the
community with a spinal cord injury. Rehabilitation psychology, 50(4), 397-407.
Cloyed, E. & Healy, D. (2004). Caregiver’s event: the process of developing a wellness
day for caregivers. SCI Psychosocial Process.
Elliot, T., Shewchuk, R., Richards, J. (1999). Caregiver social problem-solving abilities
and family member
adjustment to recent onset physical disability.
Rehabilitation
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Ilardo, J. & Rothman, C.
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